[Politech] Privacy villain of the week: Bush's electronic medical record scheme [priv]

From: Declan McCullagh (declan@private)
Date: Thu May 13 2004 - 12:28:54 PDT

  • Next message: Declan McCullagh: "[Politech] Canada gets its own Patriot Ac v2t: bill C-7 [priv]"

    -------- Original Message --------
    Subject: [NCCP] Privacy Villain: Federal anti-medical-privacy push
    Date: Tue, 11 May 2004 12:35:01 -0400
    From: J Plummer <jplummer@private>
    
                           Privacy Villain of the Week:
                         Federal anti-medical-privacy push
    
    President Bush issued this past week an executive order mandating that
    the health care industry keep all its records in electronic format. With
    the HIPAA 'privacy' rules now in effect, and Rep. Ron Paul's annual
    crusade to render inoperative the national health identification number
    facing an unsure fate, the move holds the potential to seriously
    negatively impact the de facto state of patient privacy.
    
    Executive Order 13335, signed on April 27 by Bush, directs the
    Department of Health and Human Services to establish the "nationwide
    implementation of an interoperable health information technology
    infrastructure." The order lays out sweet-sounding justifications for
    the mandate, which indeed are not entirely without merit. Computerized
    health records can be more convenient for patients who often find
    themselves being shuffled between several doctors and are disinclined to
    keep a copy of their records themselves.
    <http://cryptome.org/eo13335.txt>
    
    But ultimately, this "collaboration among public and private interests .
    . . consistent with . . . health information technology standards for
    use by the Federal Government," represents a usurpation of consumer
    choice among available tradeoffs between privacy, risk, security and
    convenience. Computerized records can be more easily passed not only
    from one relevant physician to another, but from database to database,
    accessible by not only doctors, but HMOs, insurance companies,
    marketers, and governments.
    
    Consider that the HIPAA (Health Insurance Portability and Accountability
    Act of 1996) privacy rules require doctors and hospitals to open up
    their records to HHS and other government agents without so much as a
    court order. Besides HHS, the Food and Drug Administration, foreign
    governments "acting in collaboration with a public health authority,"
    and various and sundry other government agents tasked to "public
    health," can all access private patient records. Such accesses can
    easily be done without notification of the patient, or for that matter
    anyone else under a national system of interoperable health databases.
    
    Elsewhere in "HIPAA", language mandates a "unique health identifier" be
    assigned to every individual, employer, health-care provider, and health
    insurer. Rep. Ron Paul has been successful in having the Congress
    withhold funding for this provision each year since HIPAA was passed.
    The Institute for Health Freedom reports that Paul this year has
    requested that the House Appropriations Committee repeal the provision
    altogether.
    <http://forhealthfreedom.org/Publications/Privacy/Ready.html>
    
    If Rep. Paul's effort is unsuccessful, a national "unique health
    identifier," combined with the grand scheme interoperable computerized
    health databases and rather open access to files mandated by HIPAA,
    could conceivably spell a privacy doomsday for health records.
    
    Consumers should be free to choose whether they want their sensitive
    health records so easily accessible in these interconnected databases,
    and take this into account when deciding how to obtain health care.
    Policymakers in the Beltway who aggregate unto themselves these
    important consumer decisions are the Privacy Villains this week.
    
    --
    By James Plummer
    
    The Privacy Villain of the Week and Privacy Hero of the Month are
    projects of the National Consumer Coalition's Privacy Group. Privacy
    Villain audio features now available from FCF News on Demand. For more
    information on the NCC Privacy Group, see www.nccprivacy.org or contact
    James Plummer at 202-467-5809 or via email. This message archived at
    <http://www.nccprivacy.org/handv/040507villain.htm>
    
    
    
    --
    James Plummer
    Policy Analyst
    Consumer Alert
    (202) 467-5809
    
    _______________________________________________
    Politech mailing list
    Archived at http://www.politechbot.com/
    Moderated by Declan McCullagh (http://www.mccullagh.org/)
    



    This archive was generated by hypermail 2b30 : Thu May 13 2004 - 13:27:23 PDT